Support Group Leaders
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cristywarsc ...@mindspring.com
This problem with Marge is just tit fot tat Ann There have been many great support group leader in this country I do not have my group list but here is some of the Origionals Lucile Bodtke: The first woman to go to congress and the FDA re BI Marie Walsh Josey Vanderpas Sybil Goldrich The first women to go before the FDA with Testimoney Janice Ferriell Linda Thompson Ruby Rhan Beth West Peggy Pardo Kay Dlugopolski Jamma Russano Ilena Rosenthal Walt Monger Melody Mello Kathy Keithley-Johnston Marlene Keeling Martha Murdock Sue Krieger Jenny Knap Marti Jacobs Kin Hoffman Samantha Haas Brenda Glenn Marti Carnie Celene Halle-Vaughn Susie Cunningham Janie Cruise Susan Boone Sharon Bige Lynda Roth Diane Griffith and all the other MANY more people who have gone out of their way to the help women. What we all need to do and say is that we all try and do things in our own way to keep at least 1 woman from not receiving Breast Implants.
Please No one get mad If I haven't listed you as a support Group leader. All of these women and many more didn't always get along and they all had their times with the other leaders but their purpose was the same. To Help Women and children who were ill from implants and to help keep other women from making the same mistake we did.
We should bless everyone of them for some of them are no longer with us.
Cristy Women In Health
oorer ...@aol.com (OOREROOM)
Looks like a list of Ilena's enemies
cristywarsc ...@mindspring.com
You have no idea of what I'm talking about. These are the women including Ilena who have spent thousands of hours helping women who are Ill from breast implants.
I will not play your little I hate Ilena game on this thread.
On 03 Aug 2003 17:36:12 GMT, oorer...@aol.com (OOREROOM) wrote: Women In Health
il ...@san.rr.com (Ilena)
Thanks for doing this, Christy.
I'd add Shirley Goodner and Carol Mancini ... both who did excellent work.
my ...@jps.net (Myrl)
Boy, that list is like traveling down memory lane. Some are still involved, other's are not.
I'd like to add a few other memorable names: Uneeda Laitenan Angela Hans Toni Risch Kathy Nye Pam Dowd Barbara Hausenauer Coleah (sorry Coleah, I can't remember your last name today) Rogene Schorer Ruby Rahn Susan Schaezler Kathi "Pureheart" (sorry Kathi can't remember your last name) That's just to name a few coming to mind, that have given tremendous contribution.
There are a couple of other's that have gone far beyond the call of duty to get the word out on breast implant problems, but have been so embarr***ed by the bickering, they no longer wish to be ***ociated with this issue.
The women that I find among the most valuable, are the 20+ plus individuals that came together to form the "Bustakeer Army" after Angela Hans was able to obtain a set of the original Discovery CDs of breast implant litigation. This "army" literally spent collectively hundreds of hours opening, the original image files to these documents, and diseminated them to others, via the net and e-mail.
That group represented in my opinion, one of the most productive groups we've ever had.
Myrl
il ...@san.rr.com (Ilena)
Janet Van Winkle also did some excellent work ...
cristywarsc ...@mindspring.com
Myrl, You should add yourself and Carol Mancini There were so many of us that it is hard to remember everyone and with silicone brain it makes it harder.
You all must remember that all of these women worked there butts off and were tormented, har***ed, called traitors, were "paid off by Manufactures", some of us had Death Threats, we were subpoenaed by the manufactures to turn all our evidence to them.
Mine personally went to a storage unit that was not at my house because of the rumor we were going to be attacked by the manufactures, then came the interrogatories from them.
Several of these men and women are now deceased and it is a shame because all most all of the others non't want to be ***ociated because of all the crap they went through.
On 3 Aug 2003 15:44:50 -0700, my...@jps.net (Myrl) wrote:
ma ...@webtv.net (Impeach bush!)
Margo Cameron UK Support Should be added to the Top of that list Marge http://votetoimpeach.org
"Rogene" saxon...@yahoonojunk.com
Don't forget Linda Dintino . . . she worked very hard in Fort Worth, even though she was very, very sick herself.
...
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pamgd1 ...@yahoo.com (CP)
Add Irene Beard and Peggy to the list. Peggy died last July. I miss her messages of encouragement and her questions whenever she heard anything doubtful or questionable. Irene Beard was a true martyr to this issue. Our side successfully, with the enthusiastic cooperation of our former AG, had Irene Beard incarcerated for 3 years for "damaging thousands of cases" of breast implant women. Dow's legal team about crapped their drawers over that deal.
And wasn't there a Mary Jane Bradley in CA who worked hard with the support groups there?
I was especially impressed at the IOM by the lady who stood at attention and saluted the women who had been damaged by breast implants. I can't remember her name, but her action has stuck with me.
At one point another leader and I were sent interrogatories. Dow wanted all our documentations, memos, phone messages, etc. The leader called me and wondered what to do. Well, we decided we weren't going to let fear run our lives, nor were we going to copy every bit of paper we had collected. I wrote up a response to send that got us both out of the loop. We just said we were lay people, not attorneys, and that our decisions were made on everything Dow had ever said or done and were based on all the documents they had sent out through the years. That was the end of Dow wanting our documentation. I guess they didn't want their own stuff back.
Pam Dowd
my ...@jps.net (Myrl)
Yes, yes. . .Linda Dintino. I had also forgotten about Janet VanWinkle. You're right, Linda Dintino was very sick, and going through a great many things, but has consistently worked very hard for us. I remember Janet VanWinkle as being a kick in the pants, and funny. But haven't heard from her in a long time.
Myrl
il ...@san.rr.com (Ilena)
Absolutely ... I was just going to add her ... she's done incredible work!
And MarLou Boots in Holland ... Cosima Meyers in Switzerland Rosalind in England ... and some other great British women whose names I'll try to find who deserve to be mentioned.
pamgd1 ...@yahoo.com (CP)
Tony Lambert with his Canadian Connection site has so graciously kept many documents on line after other sites have dropped off. A great big thanks to Tony!!!
And wasn't there a Toni Butts who was an early leader in Louisiana?
Susan Lyons from CA.
Pam Dowd
il ...@san.rr.com (Ilena)
The best moment from the IOM ... imo ... it relates to Lt. Col. Anne M. Adams at the IOM in 1998. Here is a letter I wrote regarding her comments.
To: rherd...@nas.edu (Roger Herdman) Dr. Herdman: As the dust is settling on the IOM Report, one scene from the Friday, July 24th meeting continues to resonate in my head. This is the interchange that concerned many of us regarding the non-partiality of one of the Panel.
To my understanding, the Panel Members were all to be Scientists with no pre-conceived notion as to the toxicity of silicone breast implants.
Dr. Martellock somehow slipped through a crack.
During introductions, this was his: Dr. Martellock: I'm Art Martellock. I'm a retired chemist from Eastman Kodak, and I'm a consultant in silicone chemistry.
During questions, here was his comments: Dr. Martellock: Yeah. And I wouldn't worry about the toxicity of D4 if I were you. Because I am 70 years old and I have had lots of D4, so I am . . .
One of the women in the audience then shouted: Not as much as me!
Dr. Martellock: Oh, yes, I have. Yes, I have. I have made gallons and gallons of this stuff, washed my hands in it.
Dr. Bondurant, the Chair, then attempted to halt this revealing interchange: Whoa. Let's . . . time, time! Hold it.
Dr. Martellock: Breathed it constantly.
At this point you may recall, Dr. Bondurant called: Time!
Time indeed, Dr. Herdman. His bias was clearly exposed at this point.
Definitely one of the few comedic moments occurred shortly thereafter, when our own, USAF Nurse, Retired Lt. Colonel Anne Adams stood to address this outrageous revelation.
You will probably remember her, as she concluded her earlier speech with: Lt. Col. Adams: I would like to salute the courageous women who are here today, all the women who are too ill to be here today, and lastely, a final salute to all those who lost their lives in the battle of the siliocne holocaust created by Dow Corning.
Lt. Col. Adams then saluted the panel, and turned, to once again, salute the audience.
It was a Kodak moment.
Later, from the rear right microphone, Lt. Col. Adams: I wanted to ask the Dr. Martellock . . . who seems to have worked with D4 . . . we have noticed that he has to leave the podium several times as we have to leave our seats. As a nurse, I have looked at your symptoms, you even walk like we do. So I would highly suggest that you get tested for D4 toxicity. You even have a cough, you are very stiff.
And I have watched you several times and I have counted seven times you have already left the stage.
(Laughter) (some clipped) Lt. Col. Adams: . . .but I am also very concerned about you, sir, since you do work with D4 and you do have the dry cough, very stiff.
Dr. Martellock: I have . . . I am recovering from a very bad cold.
Lt. Col. Adams: Well, we do, too, all the time. We have chronic inflammation, chronic respiratory stress.
Dr. Matellock: Osteoarthritis in spades.
Lt. Col. Adams: Yes, sir, we have that too.
Dr. Matellock: I have a very bad heart . . . I am in atrial firillation constantly. I take all kinds of crazy medication.
Lt. Col. Adams: We do, too.
Dr. Matellock: And they prod me to go out back quite frequently.
Lt. Col. Adams: Yes sir, I have counted 7 times.
Please, Dr. Herdman, can you explain how this obvious model of partiality and conflict of interest escaped the scrutiny of the Institute of Medicine and the National Academy of Sciences?
We look forward to your reply.
Ilena Rosenthal Director, Humantics Foundation for Women Breast Implants: Recovery & Discovery
il ...@san.rr.com (Ilena)
Joan Huffman in the San Diego area has hosted several excellent support meetings and has helped many, many women.
Patty Faussett for 3 years has led a wonderful Saline support Group.
http://www.humanticsfoundation.com/patty.html Lea Evans in Canada has done some wonderful support work for years ...
http://www.humanticsfoundation.com/lea.html
cristywarsc ...@mindspring.com
As I said in the first place there are hundreds of women out there that have fought this cause, I once had one of Carol Mancini's Group leaders lists With all those names but it is somewhere in the barn or Still with the origional studies starting in the forty's Still in file cabnets at Alans that I have not picked up.
Right now I'm trying to get the links back up for the http://womnhlt.home.mindspring.com back up I know I have the disks I just have to have it loaded with a fire wall and get cable network as I can not keep my computer on 24/7 so I have to use my old one so yu guys can get to the links. But I have a little problem with funds since my seperation/divorce and Dont know when I can get it up. With the heat and all the changes since I've been here it does get rare for me to leave the house.
Please this is not a donation request, do not send donations I don't want mplnt and the rest of that crew think I'm stealing from the women. It's just one more thing on the list That I have to do. 10 years of paperwork is alot to go through. That is what i'm doing now since litigation is over I can finally get rid of all the paperwork the manufactures and MD wanted me to save. Then I can bring in the silicone stuff. as they sat just do what you can one day at a time.
Cristy The page is still up but you can't get to the links right now.
On 3 Aug 2003 22:42:19 -0700, pamgd1...@yahoo.com (CP) wrote:
il ...@san.rr.com (Ilena)
Adella Matthews in Canada has also done excellent support work ...
Lany Donnelly has a lovely group http://groups.yahoo.com/group/SBIPrayerForum/
il ...@san.rr.com (Ilena)
I just noticed that Christy, who started this important thread, isn't listed.
She took over the Women in Health group in So. California for Melodie Mello in 1995 and did an outstanding job for years ...
Few may realize that her work, along with Peggie Pardo, will enable women with Mentor, CUI or Bioplasty implants to be included and receive money from the Dow settlement ... if they had had their way, these women too would receive $25K for ruptures ... the only point they were not able to grant ... hard as they tried.
Thanks for years of dedication and excellent work Christy ...
"Rogene" saxon...@yahoonojunk.com
Something that should be noted by all those dedicated to putting Ilena down . . .
Many of the support leaders came to the cause as a result of Ilena's efforts, whether directly, or indirectly.
Ilena provided the glue that got us working together. .. . I'm certain that's the reason she has been the subject of such awful vilification!
Regardless of how much we've fought against the corporate/medical industry on this issue, they continue to claim that breast implants are safe . . . It doesn't matter how many women, or children, suffer. The bottom line is how much money goes into the pockets of powerful interests.
How much longer can this go on?
Rogene
cristywarsc ...@mindspring.com
Sirry I did not have the lionk right now it is.
Cristy
oorer ...@aol.com (OOREROOM)
All of whom are ripe to be included on Ilena's hate list as soon as they disagree with her.
oorer ...@aol.com (OOREROOM)
You are way off base with your "certain" conclusion. Ilena has vilified herself.
Only you and Myrl were willing to write letters of support in Ilena's SLAPP suite.
Not wishing to speak for Myrl, I'll just say that she appears to have changed her mind about supporting Ilena.
Ilena is not glue but rather sticky slime.
Bob
cristywarsc ...@mindspring.com
Bobby dear, You are way off on this one, so is the other person who posted.
Ilena came into the breast implant picture a number of years after most of the original people were already working. It was to much stress on them and alot of them from harr***ment st as you do. I personally have been here since 1992. I helped Melody Mello with her group for a number of years. I took over the support group in 1995.
Ilena has indeed brought a lot of the people listed into the picture as she was able to reach across the world HERE and get women inspired to start a support group.
As long as Ilena continues to support the women which she is as I'm seeing her request from people for support I will continue to support her.
I know many other women who help her as well and support her cause.
This is a support system and we are the women ill from breast implants not you. So get off your High Horse about Ilena go try slamming someone else into the gutter.
As I said before Most of the women who are support group leaders did not get along with other support group leaders but we just chose not to continue communicating with them and when we had to we did to get the ball rolling. The cat fights were behind the scenes you just choose to go and spit your spew out in this open forum. Some of the people I mentioned in the original e-mail I do not care for or care about there tactics some do not care about me. They were still support group leaders and they still deserve recognition for the work they did.
Why do you have to always punish something that is posted that is good. And you always manipulate it towards something bad about Ilena.
Or that it was something Ilena started. I started it and I'll tell you one more time GO GET ON YOUR HIGH HORSE AND GO SOMEWHERE ELSE.
If you do not have anythng nice to say about the Support Group Leaders than stay out of the thread.
Cristy Like I said go climb on your High Horse and go climb the alps or something.
Cristy BY BYE BOBBY DEAR On 04 Aug 2003 19:57:47 GMT, oorer...@aol.com (OOREROOM) wrote:
ma ...@webtv.net (Impeach bush!)
Watch it Bob, there's a new self appointed cop on the board!
Marge http://votetoimpeach.org
my ...@jps.net (Myrl)
I admit that the AOL Discussion Board was my first point of contact in late 1995. Already open combat was going on between Ilena and "other" manufacturer entities. After just a few short sessions on that board, I quickly left and found contact with others that were actual breast implant recipients, and victims.
I say "other" manufacturer entities, because I will go to my grave believing there was a major reason why a self appointed, non-implanted woman, was catapaulted into our midst with a fully functioning Breast Implant Newsgroup. While her feet running at break neck speed. Was it to control the Victims, or to create a place where we would openly speak, and our words be archived for future litigation purposes.
Knowing her penchant for the quick buck may be part of it.
I do know this. . .Ilena is clearly at war with a large number of the breast implant victims and other advocates within this cause. And, that speaks volumes.
As it is now, it was then, and will always be on these very open internet forums.
I believe Ilena had an oportunity to bridge certain differences, and could have in the end been a synthesizer for those that had knowledge of products they created, and those that were the recipient of those faulty devices.
It was not lost on me, that after many years of absence on this board, and returned, I asked one simple question, and it was Patrick O'Leary that blew me away, by respectfully answering that he believed that the Platinum and Tin in my particular implant, that could have caused problems I experienced. Because I was a McGhan/3M recepient, I was both astounded and grateful for that information.
I have noted that Kathi (Pureheart) has provided very valuable information on this board in the last months. She has always been straight forward, and respectful of all entities that come to this forum, and to my knowledge has never been treated disrepectfully by anyone appearing to be from the manufacturer side of this equation.
In fact I have not really seen any of our implant victims disrespected. I believe it speaks to treating people with a certain amount of respect, and expecting that like behavior will come in return.
I continue to mourn for lost information that may have come through mutual dialogue, had we not had one claiming to represent us here, that was so combative and divisive.
I can handle much difference of opinion, about a broad stage of issues. . . including whether or not the war should be discussed, whether Bush should be discussed. We can all invision this board to be for breast implant problems only. But we cannot mandate it to be.
This is the Wild Wild West of internet interaction, and folks are pretty much free to say and post what they wish.
The war will hopefully end one day. In a couple years we'll have a new election, and possibly a new president. These things are all transitory. Nothing in life is permanent. . .There is only varying degrees of temporary.
Although, I feel Marge's posting seem to be a little virulent in number regarding the war/Bush. I must admit (without totally egging her on), that I read a great number of them. If I didn't want to, I'd simply filter her out, and go on.
It is very difficult for any breast implant woman to not be interested in policies brought to the people, by this administration. These policies affect us one and all!
Myrl
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