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jennybravo jaispl...@worldnet.att.net
I came across a really nice article on Basketball Player Mahmoud Abdul-Rauf. I think it has an excellent description of OCD, (Especially the reading part, which *I* can really relate to...) and how he felt growing up with TS, the benefits for him and how he deals with it now.
http://www.vancouversun.com/newsite/sports/001028/4768654.html jennybravo
--
In the end, we will remember not the words of our enemies, but the silence of our friends.
MLKjr
Vger voyager112...@my-deja.com
> http://www.vancouversun.com/newsite/sports/001028/4768654.html
> jennybravo
> --
> In the end, we will remember not the words of our enemies, but the
> silence of our friends.
> MLKjr Thanks for bringing this to our attention, jennyB. I noticed there is a link at the bottom to send comments to the author and I did that. I think it was a nicely written article. I know it was probably a little inaccurate to imply that TS is a disorder of the motor cortex, but overall, I agree that the article was EXCELLENT. I think that when we see an article like this, it is important to encourage the author, because these guys do really need encouragement and motivation to strive for journalistic integrity, which is so important to us all. - Vger Sent via Deja.com http://www.deja.com/
Tim in Golden tingol...@my-deja.com
I remember when Mahmoud Abdul-Rauf played for the Nuggets. I always wondered if his flag epsiode that ruined his career was related to OCD, because at the time, others in his religion said in the newspapers that it was not part of the faith's religious beliefs that one couldn't stand for the national anthem. It seemed to me that he just latched on to that idea, and wouldn't let it go, regardless of any reason.
Tim in Golden Sent via Deja.com http://www.deja.com/
"gbkish" gbk...@mediaone.net
This is Chris Jackson from LSU then the Denver Nuggets
Gary Marmer gjmar...@mad.scientist.com
We took a group of kids from the Illinois Chapter TSA to a game in Milwaukee when he was playing for Sacramento, and we had a private meeting with him. He was a real gentleman, and the kids loved it.
Gary
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fen ...@aol.com (Fenisz)
This is definatly an excellent article. BTW, before my Dx, when I first suspected TS, I mentioned something to a business ***ociate. His responce was that Chris Jackson of the Denver Nuggets has TS. Mahmoud was the first person that I knew that had TS.
Fred in denver
"Kathryn A. Taubert" kataub...@prodigy.net
. It seemed to me that he just latched on Tim, it's also possible that he believed, truly,in what he was saying, did not see any reason to deny his convictions.
One doesn't have to agree with him to admire his integrity to his own ideals, regardless of the reason.
KAT in CT
Vger voyager112...@my-deja.com
> > Tim in Golden
> Tim, it's also possible that he believed, truly,in what he was saying, did
> not see any reason to deny his convictions.
> One doesn't have to agree with him to admire his integrity to his own
> ideals, regardless of the reason.
> KAT in CT I completely agree with that last thought, KAT! This was a guy who wasn't beating anybody up or threatening or discriminating against anyone because of his beliefs, he was simply expressing them peacefully.
Although I disagree with his beliefs, I also admire him at some level for the way he handled it. I even more admire his being willing to admit much later that he probably handled it wrong! That kind of honesty is an inspiration.
Vger Sent via Deja.com http://www.deja.com/
Vger voyager112...@my-deja.com
I also think that's possible Tim. We certainly can't know for sure.
Another thing that occurred to me, though, is that this is someone whose lifestyle, surroundings, world view and identity are very different from what they were in the background in which he grew up. A person in that situation can have problems trusting any external standards by which to judge his actions and has to look to his own internal standards, reasoning and experience more than others feel the need to do.
Vger Sent via Deja.com http://www.deja.com/
"KATHRYN A TAUBERT" KATAUB...@prodigy.net
An he was dumped as spokesperson for a number of organizations because he had that kind of integrity.
Including TSA, by the way, who chose not to have him continue his ***ociation with the organization because of his outspokenness.
How sad.
KAT in CT
jennybravo jaispl...@worldnet.att.net
That really bothers me...It seems to me that National is lacking in integrity. They dis***ociate themselves with someone like him and continue with Maury Povich &Co. What kind of sense does that make?????
They should have been the first ones in his corner. I guess we know where NOT to turn when we need someone to cover our backs....(Two clich?©s in a row...sorry about that...) I'd also like to hear their policy on reviewing movie and television scripts...That Touched by an Angel show was really bad. What suggestions did TSA give that were incorporated into THAT script???? If it had come to me (and IF I was a spokesman for TSA, of course!), I would have refused to have anything to do with it, threatened to contact the media and made a fuss about how lousy it was...I remember when after we first explained to Raymond about his TS, he asked me what he would still be able to do when he grew up.
(that about broke my heart) I told him he could do anything, and I become more convinced by the day that he can. But shows like TBAA and possibly Allie McBeal, will make it harder on him. (Currently he has decided he wants to be a farmer!!!! GEEZ, I have no idea why...that didn't come from MY side of the family!!!)<VBG> If he had seen TBAA, I'd have been spending days explaining why it was so stupid..."No I don't feel like that at all, sweetie, the only person your having TS could cause me to hit is the one who wrote that idiotic show...." What is really bad is that a parent can and should get angry if somebody is messing with their child. But to use that example, and then to make the kid believe he was at fault is just plain stupid. And for TSA to have anything to do with it, and NOT issue a warning about the content speaks poorly about their judgment. And why don't they ever have their National conventions in Las Vegas or Reno where people without a lot of money can get inexpensive flight/hotel packages to attend? Oh, and I hope all "Amuhricans" are paying attention to George Dubya's appointments...specifically Ashcroft as Attorney General and Chavez as Secretary of Labor...Here is an example of their beliefs on special education, (and Ashcroft's reactionary reaction to school violence): http://www.pappanikou.uconn.edu/upa511.html ALERT: SENATOR ASHCROFT SEEKS TO DENY EDUCATIONAL SERVICES FOR STUDENTS WITH DISABILITIES Background: Senator Ashcroft (R-MO) intends to offer a proposal for the reauthorization of the Elementary and Secondary Education Act, which amends the Individuals with Disabilities Education Act (IDEA) with respect to disciplining children with disabilities. This amendment will likely be offered on Wednesday, May 10th. Specifically, Senator Ashcroft's amendment requires that schools develop policies allowing for the expulsion and cessation of all services for young children and youth with disabilities who bring (or threaten to bring) a weapon or illegal drugs to school or a school function, or who ***ault (or threaten to ***ault) another individual.
While CEC shares the desire to protect all young children and youth from school violence, CEC strongly opposes Senator Ashcroft's amendment for three reasons: First, because it requires all schools to develop policies to cease educational services for students with disabilities; second, because it fails to distinguish between threats and acts of violence in terms of cessation of services; and third, because it fails to account for student's disabling conditions and its impact on their behavior.
Although young children and youth must be held accountable for dangerous behavior and the rights of others must be protected, educational services must continue in an alternative setting for children expelled from school for such offenses. We believe that educating children and youth in a safe environment is crucial to crime prevention, community safety, and a successful transition into the work force, and that all children with disabilities must continue to receive a free appropriate public education.
And this from George W.'s nominee for Secretary of Labor: http://www.texnews.com/opinion97/chavez082097.html Look out Harvard, here I come By Linda Chavez <snip> According to U.S. District Judge Patti B.
Saris, federal disabilities laws require universities to accommodate students like me, whose learning disabilities make it difficult for them to complete normal degree requirements. You see, I'm dyscalculic, which means I have trouble processing numbers.
I used to think I was just bad at math, but I know better now. I have a bona fide (if undiagnosed) learning disability: dyscalculia. Those C's and D's I earned in trigonometry and calculus years ago can't stop me from earning a degree in physics, astronomy, chemistry - or mathematics, for that matter, if that's what I want.
All I need now is someone to diagnose my problem. And last week, Saris made it a lot easier for enterprising would-be students like me to find someone to certify our disabilities.
<snip> Once I get proper certification for my disability, I'll be able to take my college entrance exams at my leisure. No timed tests for me or any of the more than 21,000 other students yearly whose learning disabilities entitle them to extra time to complete the SATs and other entrance exams.
I may even be able to have someone else with me during the exam to help fill out the answer sheet if I can show that I have a tendency to mean one thing and write another when I'm under stress.
Once I'm admitted to the science department of some prestigious university, which should give me special consideration even if my test scores are lousy (what do you expect from someone with dyscalculia?), I should have smooth sailing ahead.
I'll be able to force the university of my choice to provide me with paid tutors and note takers, allow me extra time to complete ***ignments and tests, and, best of all, dispense with course requirements that are too difficult for me because of my disability.
Think I'm making this up? Not according to the Aug. 25 edition of New Republic magazine, whose cover story details the travesties of the learning disabilities scam in higher education.
The culprits are three federal laws, the 1973 Rehabilitation Act, the 1975 Individuals with Disabilities Education Act and the 1990 Americans with Disabilities Act.
Although the laws were originally intended to accommodate students and others with moderate to severe physical disabilities, they now justify all sorts of allowances for amorphous conditions, ranging from attention deficit disorder to dysgraphia (poor handwriting, in the disabilities lexicon).
<snip> A lot of these "accommodations" and "disabilities" she laughs about will probably sound familiar to many of us here...at least anyone who has a child who needs some sort of accommodation....This is the attitude of our new "leaders"....Do ya think maybe you should write THEM????????
ADA is already in the hands of the Supreme Court...
Okay...I'm done for now...
'til next time...
jennybravo
--
In the end, we will remember not the words of our enemies, but the silence of our friends.
MLKjr P.S. National TSA's treatment of Mahmoud Abdul-Rauf is a prime example of my sig' line....
"KATHRYN A TAUBERT" KATAUB...@prodigy.net
The decision about Rauf was made by a former President of TSA, and apparently supported by staff and a majority of the BOD. I do know that some BOD members disagreed vehemently with it. However, their voices were not sufficient to override the rest. It had to do with Rauf's political outspokenness, the feelings by some on TSA's BOD that he wasn't demonstrating the kind of "image" that TSA should ***ociate itself with. A planned video project with him was cancelled with it as a result. I was not a BOD member at that time, but have seen written verification of this decision. I would not have agree with it either.j I'd also like to hear their While TSA does review scripts, they have no authority over the final outputs, since 1.) they review at the sole discretion of the producers and 2.) any recommendations TSA makes do not bind the producers to accept them.
Therefore, no matter what TSA recommends, it's not "their fault" if the producers air whatever they choose. And we all know that more times than not, sensationalism wins out. To our disadvantage.
And for TSA to have I can't address this matter specifically since I do not know whether or not TSA reviewed this particular script. I do know that, in the past, when TSA disagreed with an aired program, they have registered their complaints in writing, vis a vis, Deuce Bigalow.
And why don't they ever have their National TSA used to do this. The last couple of conferences have, however, been held on the East Coast. Some of us on the BOD (I am no longer a BOD member, by the way, having decided not to submit my name for renomination this year) did not agree with that decision either. Although the 'deal' with the hotel in VA seems to be a good one, the primary reason stated for having the conference in VA two conferences in a row, and apparently future ones for the foreseeable future is/was for the convenience of staff and conference organizers.
KAT in CT
Tim in Golden tingol...@my-deja.com
In no way did I mean to disparage Mahmoud Abdul-Rauf belief's. I posted that blurt-mail based upon my own experience with OCD. Obviously it's pure speculation. Sorry if I offended anyone.
But it's irrelevant the reason for his actions. A person ought to be accepted for themselves. He got a raw deal from the general public and media. It's hard to believe we have any semblance of a tolerant society when one can be made a pariah so easily.
Tim in Golden Sent via Deja.com http://www.deja.com/
jennybravo jaispl...@worldnet.att.net
I knew you would disagree with it and "kudos" to the board members who fought the decision....
In a post alerting us to this show, Jean Valencia wrote: 1) Touched by an Angel, 12/17/00: Christmas show features a young boy with TS, his relationship with his father, and an unfortunate incident related to his having TS. TSA provided input into the script, which was already in production by the time TSA received it. Several, but not all, of TSA's suggestions were incorporated.
From this, I ***umed they read the script, and if they did, they should have issued a warning instead of an alert.
If you ask me, it is a great loss that you are no longer on the BOD. You seem to have a real connection and feeling for *us* average folk.<smile> And you do not seem to shy away from sticking to your beliefs (Like Abdul-Rauf) and doing things that need to be done. It is too bad they do not have a board full of KATS. Although they seem to do a great job with research and funding, it seems to me they have a problem connecting with people.
YIKES!!!! What about the convenience of potential attendees????? (I have no doubt you asked that question of others on the BOD already!)<smile> jennybravoAKAjai
--
In the end, we will remember not the words of our enemies, but the silence of our friends.
MLKjr
jennybravo jaispl...@worldnet.att.net
Don't you think he did a great job of expressing his problems with OCD?
I have tried to explain to my husband how I have problems with "pronouncing" words correctly in my mind and going over words and sentences again and again. My husband still might not "get it", but I can now point to somebody else's experience with it, and say "See, I'm not the only one!"<g> I thought Mahmoud Abdul-Rauf did such a wonderful job of expressing himself. I know his story is not true for everybody with TS, but I think it gave a really nice insight into growing up "different" and the feelings some kids have. It is such a shame TSA dropped him as a spokesman.
Yeah, it kind of makes ya think, doesn't it???
jennybravo
--
In the end, we will remember not the words of our enemies, but the silence of our friends.
MLKjr
"Kathryn A. Taubert" kataub...@prodigy.net
s. A person ought to be Agreed, Tim. You are so right.
KAT in CT
"Kathryn A. Taubert" kataub...@prodigy.net
"> I knew you would disagree with it and "kudos" to the board members who I believe many, if not all, of them are no longer there...sadly..
This is a disclaimer......with good reason no doubt. WE can only hope that the production is better than everyone fears.
Thank you JennyB.....very much.
Well, this trait doesn't always endear one to others "-)) People don't always applaud one for being outspoken...or right.....sadly....
Although they seem to do a great job with In all honesty, I agree, and have told "them" so. They are using a consultant presently to attempt to identify some things they need to do differently. We can only hope that they ask the right questions in the right way at the right times of the right people, however.
And THEN, we can further hope that TSA will make good use of that information.
Time will tell.
Yep. And succeeded only in making a few folks even unhappier with me than they already were.
LOL!
I suppose there might be other reasons why the decision to hold the Conference in VA was made, again and again...but the reason that was stated in my presence was as outlined.
Having planned and implemented many such conferences in my own professional life, however, I can tell you that there is no single facility that necessarily does it 'better' than all others. I also believe that the 'customer' is the FIRST entity to be considered when planning such conferences. There are practical issues of staff time to be considered, certainly, but there are just as many reasons, and more, quite frankly, that have to do with the needs of customers and constituents to be considered in these matters.
I have had my disagreements with TSA, both as a constituent and as a member (former) of the national BOD.
I have been reluctant to "go public" with them, hoping that my behind the scenes efforts would prove fruitful. However, I'm not particularly optimistic at this point, that much will change without the direct, expressed input of more TSA constituents and potential constituents. A closed system is at certain risk of entropy.
IMHO, TSA is at risk without opening a few doors. Or having them opened.
KAT in CT
"Joanne Cohen" joco...@mediaone.net
Just my 03 cents....1) TSA is not allowed or able to 'approve' any script, nor can they issue any "warning" on a show. Producers do what they want, even when TSA has 'input'. David Kelley is known to be sensitive about TS, but I think people need to keep in mind that this and many other shows are not educational documentaries, and basically, sensational sells. And it is ALL about the ratings.
2) Aboutt the conference. I think it's a tough call as to location.
Certainly, Vegas, etc. would be cheaper and easier for many, but can you appreciate that these conferences take two years to plan, money to send staff to the hotel for arrangements, etc.? Would you be willing to 1) have additional money come out of TSA funds to pay for staff to travel clear across the country (I believe a few times prior to the conference), 2) compromise the quality and or the comfort, accessibility of the hotel because more was done via phone, e-mail than in person, or 3) compromise the quality of the actual conference? 4) What about the extra staff time spent travelling the extra difference?I was in Houston. I was in LA. There were major problems with BOTH venues. I think people need to see both sides.....
Personally, any such conference these days is expensive. I'd rather see individual Chapters either working to raise money, write grants, etc. to provide scholarships to those who need them. (I've done this successfully several times for the Boston Chapter, and it really wasn't that hard; a few well-placed phone calls, an appeal, and a letter, and we usually got the money). I just personally get tired of all the TSA bashing done hear, when it is often obvious that while many complaints are valid, there is also a serious lack of appreciation for and understanding of what TSA DOES, and what is involved.
How many of you bought a Mercedes raffle ticket? How many realize how much time goes into the raffle, or that it raises almost $100,000? That $100,000 could fund 4 $25,000 research grants.
Um...I think I've exceeded my three cent limit!
Let's wish each other good luck tonight on Ally..but please, folks, keep in mind the type of show it is, and don't underestimate the intelligence of people who watch it......
Joanne ...
"gbkish" gbk...@mediaone.net
Although the 'deal' with the hotel Oh it was a geat one! :( The hotel lost my reservation and gave away my handicapped room! Also they did not provide transportation from the train as I requested but after I met with the hotel manager, he sent their bus to take me to the train.........unfortuantly the bus driver could NOT be found anywhere in time so the Hotel porter drove me ........being diabetic I needed OJ constantly and Kudoes to Sheri Boyd of TSA National for stepping in or I'd have died!! Real good deal.........for the mortuary!
the primary reason stated for having the
jennybravo jaispl...@worldnet.att.net
They issued a warning of sorts about Duece Bigalow..that's the kind I meant...
While at the University of Washington I was the Treasurer of the Native American Student Council. Each year we hosted a 3 day Powwow. It was a year long effort, raising close to 15,000 dollars through raffles, art work and T-shirt sales (which were made by the Native American students), grant writing, arranging for hotel and other lodging for Dancers and Drum Groups. In addition to the hundreds of volunteer dancers from across the country, we recruited top Native dance groups from Canada, Mexico, South America and around the United States. We also had to arrange for the rental and custodial staff for Hec Ed pavillion (I believe it cost us 2-3000 dollars a day), food from Marriot (we were required to use them if we rented the pavillion) and for security. We were not allowed to use tribal police officers, who offered to work for free, and instead had to hire University and Seattle police officers at double time wages. We also had to contact vendors, get all necessary supplies, reserve sufficient places for all invited and help provide housing for many volunteer dancers and drum groups who wished to participate, but could not afford hotel fees. This was done by a core group of about 6 or 7 students while others helped out as they could.
None of us were paid. While we did this we also attended school, worked, arranged for a monthly educational lecture series and provided tutoring for younger Indian kids. If we could pull this off, I'd think an organization with the resources of TSA could manage to host a conference in someplace besides Virginia.
National could just place a few phone calls and raise some money to fly the organizers to Vegas to make arrangements so more real people could attend. And I would ***ume that the hotels in Las Vegas are pretty experienced in hosting conferences. Conferences and conventions are major part of their business. The fact that National has all this "bad feeling" is their fault. I've said here before that when I contacted them when Raymond was first diagnosed, they were glad to take my money for a dumb outdated video, but did noting to make us feel like they were "there" for us. They made us feel they we were "there" to make money off because of all the stuff they tried to sell us, which was freely available on the net. My little tiny Sarcoidosis Organization goes all out to help. Appeals for funds are very limited, and I think they probably get a lot more help because of that. I get a monthly newsletter for free, plus alerts on new developments in treatments. I have a rare form of Sarcoid, and they keep me updated on any developments affecting me. *They* can do all this because they make *us* feel like a part of them, and each other. They are not some far off BOD disconnected from those they are supposed to serve.Plus, I think many of their organizers and volunteers suffer from blindness, COPD, heart liver or brain disease, and they still manage to do all this and host conferences in different areas of the country. There is no "fee" to join. If you have Sarcoid, you're a member. That's how TSA should be...
Well, *WE* raffled a one of those little motor scooters amd raised a couple hundred bucks that way....(not bad at a dollar a ticket) Um...I guess I went about 17 cents worth...<smile> jennybravo <snip>
--
In the end, we will remember not the words of our enemies, but the silence of our friends.
MLKjr
Blurt Durtwurd blurtdurtw...@yahoo.com
AST is TSA backwards..sdrawkcab AST si TSA
"Joanne Cohen" joco...@mediaone.net
Ellen, someone from TSA will be contacting you about this ASAP.
Jo
Blurt Durtwurd blurtdurtw...@yahoo.com
They also issued a warning about the last Maury Show on TS. That warning was a disgrace, in my opinion, and an insult to the brave kids and adults who took part. And didn't they issue warnings about Niagra, Niagra?
As for the Angel gook, they still have the following posted on this page: https://www.tsa-usa.org/tsinprim.htm at their website: < TOUCHED BY AN ANGEL - Their Christmas program features a young boy with TS. TSA provided extensive technical ***istance on the script.
Air Date: Sunday, December 17, 2000 - check your local listings to verify station and time for your area > Sounds like an endorsement to me. An endorsement of THE WORST TV show I've *EVER* seen! This is all that they say about Ally McBeal: < ALLY MC BEAL - Three episodes are scheduled that feature a woman who has TS. Air Date for the first episode is Monday, January 8, 2001 -
check your local listings to verify station and time for your area > You hear THAT, President Devore? I'm tellin' ya, the TSA *NEEDS* Jai!
That was HER! Yup, jennybravo is Jai!
Blurt
fen ...@aol.com (Fenisz)
On February 27, 1994, I wrote an article in the Rocky Mountain News standing up for Mahmoud. He was being attacked by the News for what they considered poor performance. This was after he received the Most Valuable Player award. This was before he received national publicity for failing to stand for the national anthem. Ironically, I don't reciete the pledge of aliegence - my personal choice. Mahmoud and I both come from low income backgrounds and have had to deal with some of the worst of America. Walk in our shoes and then make the decision to say "My country, right or wrong" Fred in denver
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